My life is not particularly glamorous or exciting – but I am excited about it much of the time. Today however I am right in the thick of the mundane necessities: the things I have been letting pile up – that encourage my nose to wrinkle and a shoulder-relaxing-sigh to escape in quiet resignation.
I do not have the luxury of crafting a long and carefully proofed post today. Sometimes – you have to pick and choose. I would rather be writing than doing the mundane. I would even rather be cooking…
It is a pleasure based principal: we want most to do the things that give us pleasure – and we want to avoid the things that do not. Unfortunately, the world and my life cannot be focused around my pleasures – as simple as they may be. This is a view I need to continually model and share with H.
It is so easy for those who live with and/or work with children with extra challenges (cognitive, social, sensory, focus, emotional, self-regulation, etc) to inadvertently give them the impression that they should never experience discomfort. The fact is that many of us are uncomfortable (at least in some little way) a fair amount of the time. We just don’t go around talking about it – because it is not very acceptable socially and others would avoid us.
Children with autism who have a core challenge in understanding the perspective or experience of others, may not see or understand that others have to suck it up and bear with discomfort and unpleasantries. Should we consider that they may not understand that we experience this – if we do not overtly share it?
I am in no way suggesting that being insensitive to the needs of those with the challenges of autism is an option. That would be ridiculous. Nor should we go around grumbling or complaining to our children. What I am instead suggesting, is that those of us who are not Autistic consider sharing our perspective so that we can normalize some of the discomfort felt by those in the spectrum and support their ability to be resilient and work through discomfort. This also creates an opportunity to talk about and model our strategies for handling discomfort and how we know that this (the not so pleasant thing) may help get us what we want (the pleasant or desirable thing).
H. asked me what avoidance is…
And on that final note – I’ll head back to the mundane …but I can’t help wondering if this post still ended up being a part of my own discomfort avoidance program
30 Days of Autism is a project designed to promote social understanding and offer a glimpse into the perspectives of those whose lives are touched by Autism.
© Leah Kelley, Thirty Days of Autism, (2011)